As lupus is an intense disease, people with this disease suffer from many symptoms and problems. They become isolated and shy to ask for help over time. If you live with someone who has lupus, you should educate yourself about this disease and help your loved one overcome it. Once your loved one can share about lupus disease, both can find the best ways to relieve lupus symptoms and prevent flare-ups.
What Happens If Your Loved One Is Diagnosed With Lupus?
When diagnosed with lupus, your loved one may be shocked and feel terrible. Because of a variety of lupus symptoms, lupus patients gradually lose their energy and become hopeless. If your loved one has lupus, here’re things she or he may suffer, including
- Physical effects. Lupus attacks various parts of the body, so you loved one usually feel pain, fatigue, headaches, and fever. Along with that, some lupus patients suffer from lupus fog, kidney inflammation, or lung problem. These lead to frustration and hopeless feelings.
- Emotional effects. Due to many physical effects from lupus, your loved one must use all of the energy to overcome and feel bad. This also changes their appearances, prevent them from joining outdoor activities, and makes them hard to take care of others. As a result, they become isolated and meet some difficulties with many relationships.
How to Help Your Loved One Share About Lupus Disease
If you want to help your loved one with lupus disease, you should understand the disease first. Then, know what your loved one suffer, encourage them to share what they go through, and help them to overcome. The following tips may help your loved one share about lupus disease
1. Educate Yourself About Lupus
As lupus is a silent attacking disease that only lupus patients know what is occurring fiercely. Sometimes, their appearance looks good, but they are tolerating a harsh pain inside. If you learn what lupus actually is, you can sympathize with your loved one. Here’re some things you need to focus first while learning about lupus
- Know the symptoms of lupus
- Be aware of how lupus affects your loved person and focus on triggers that increase a lupus flare up
- Take care of his or her emotions. People with lupus usually feel sad, hopeless, and uncertain about the future.
- Encourage your loved one to make lifestyle changes
You can learn about lupus with your loved one. Once both understand the disease, this can make a difference in how your loved one accepts lupus and handle it.
2. Communicate With Your Loved One
Besides your loved one’s life is affected, your life may be a little confused. It’s normal to have changes in moods, activities, and relationships within your family. Even so, it’s very important to keep good communication. Healthy communication allows all members of a family to connect with each other and share emotions. This helps your loved one with lupus disease is willing to share what they’re thinking. During communication, you should remember to
- Open a conversation with a friendly attitude. If you start by asking “would you like to talk?”, you may not receive your loved one’s answers.
- Ensure that you focus on healthy communication with positive information, not venting.
- Discuss the main problems of lupus disease that your loved one needs.
- Encourage your loved one ask for help.
- Communicate in a helpful and positive way. But it’s also crucial to be realistic and regulate a new normal life, instead of hoping a retuned normal life.
3. Create a Care File
To help your loved one share about lupus, you should care them by small details. For example, you can support your loved one by creating a care file. The care file will
- Provide essential information about you loved one’s disease
- Support effective communication with the doctor
- Help to reduce stress
- Help others know the current status of your loved one’s disease
You can take this file to the doctor’s appointment to help the doctor can see the progress of lupus disease.
4. Support Your Loved One to Develop a Daily Care Plan
To help your loved one share about lupus disease, you should create a daily care plan to help him or her deal with lupus. A good plan gives instruction to others who can share caregiving duties with you. Because you need to take rest during the stressful time, a daily care plan can help other people take care of your loved one with lupus.
- During making a daily care plan, you should
- Define the main problems of your loved one and what she or he needs
- Write down specific caregiving task and the essential steps to finish these tasks
- Consider helpful organizations that can be helpful in an emergency
- Adapt flexibility and change in your daily care plan
5. Encourage Your Loved One to Make Lifestyle Changes
For people with lupus, a healthy lifestyle plays an important role in relieving lupus symptoms. Also, it aims to prevent further lupus flare-ups. As a caregiver, you should encourage your loved once to practice a healthy lifestyle, including
- Doing exercises, like aqua therapy, mild yoga, or walking
- Eat a well-balanced diet with omega3s and vitamin rich foods
- Take supplements and extra vitamins, like LupuFree supplement and vitamin A, B12, C, and D
- Take rest as needed
- Reduce stress
- Get enough sleep
- Avoid sunlight
Lupus can have both physical and emotional effects on your loved one, and this can make them hopeless, unconfident, and isolated. But you can do many things to help your loved one share about lupus disease and support him or her to overcome this disease.