It’s uneasy to live with lupus as the disease damages various parts of the body, causing inflammation. People with lupus often suffer from mid and severe symptoms, such as skin rash, fatigue, joint pain and kidney failure. These may drain off their energy and overall health. If someone you love has the disease, you may also be affected. Whether it’s your partner, parent, child or best friend who has lupus, the autoimmune disease may touch your relationships in some ways. Occasionally, you can’t understand all symptoms that your loved person must suffer. He or she may seem okay one day, but be unable to get out of bed next day. This may cause misunderstanding and strain within your relationship. However, it’s important to keep in your mind that lupus is very frustrating for people who have it. Thus, you should understand about the disease and learn how to support your loved person with it.
Understand lupus and its impacts
Knowing more about lupus is one of the good ways to understand what your loved person must go through. Lupus is a difficult disease for others to recognize as the symptoms vary so much. It mostly affects women between the ages of 15 and 45. Though men and children have chance to get it, the disease is more likely to occur in women. Your loved one may suffer abnormal symptoms that last for several months and can be severe day by day, including:
- Fatigue all of the time
- Joint pain
- Muscle aches
- Skin rash
These symptoms are sometimes confused with other autoimmune diseases. Also, it’s hard to diagnose lupus. Doctors may check by visual exams, blood and urine tests or image test to give accurate diagnosis.
For people with lupus, flare ups are normal. Stress, poor diet, sunlight, unhealthy lifestyle may trigger lupus flares. Depending on people, symptoms of flare ups can be mild or severe. If left untreated, lupus can lead to complications, such as kidney, lung, heart inflammations and even be life- threatening. Thus, the more you understand the disease, the more empathy you have for your partner.
How to support your loved person with lupus
Talk honestly about lupus
Someone with an autoimmune disease doesn’t want to talk about it with their loved people. They’re afraid of saying hurting or wrong things to other’s feelings. However, avoiding conversation about lupus and your feelings may backfire. In fact, you should share how you feel, which encourages your loved one to communicate honestly about his or her feelings and what they need. Even though sharing your feelings is uneasy, it’s important to know each other’s emotions. Whether emotional reactions, such as fear, anger, or frustration they experience, these’re perfectly normal. So, allow him or her to share what they think and need. This gives your loved one a sympathy that make them feel safer and more confident during treatment journey.
Accept chances because of lupus symptoms
Lupus symptoms vary from different people. Some people only experience mild signs while others suffer from severe symptoms. They commonly have to changes their life. For some lupus patients, they can’t be able to complete tasks or activities they were used to doing. These tasks may shift to you. So, you need to prepare for this change.
For example, if your partner takes responsibility for household chores or earning the income for the family, it’s possible to shift these responsibilities to you. This can be difficult, especially when it has impact on personal relationship. But, only accepting changes makes your loved one’s life better.
Ask your loved person what he or she needs
Someone with lupus is sometimes too frustrated to ask for help. If you’d like to help your loved person but are unsure what she or he needs, should ask. It sounds simple, but many people think that they know his or her needs, so no need to ask. You should remember that lupus symptoms can vary from day to day. What your loved one needs help in one day may be different from what they actually need on another day. Thus, it’s necessary to ask.
However, you shouldn’t assume that your loved person can’t do anything, this can hurt his or her self- esteem. Instead, should make it as a genuine offer to help. For example, you can ask whether you pick up the children from school or buy something from the store. This can be helpful when you’re willing to help.
Get support for yourself
Though you’re not a lupus patients, you still need support. Why? Because you may also experience a series of feelings, from anxiety and fear to frustration. These emotional reactions are completely natural, but you need to escape from them. You can join some lupus support groups that allow family members to sit in. It’s useful to share your feelings or troubles with others who are experiencing the same thing. This also lets you know that you’re not alone.
Take a break
If you’re taking care of a person with lupus, it’s important to look after yourself, too. Try to take rest to break out of the caretaker role. You can feel a little bit guilty, but it’s essential to spend time for yourself, and take care of both. You should go out, visit relatives or just take a bath to relax. These give you more energy to support your partner.
Lupus is a harsh disease with different symptoms, so it’s usually uneasy to live with it. If your loved person have lupus, you can support him or her by understanding what they’re going through. It’s also important to help them prevent lupus flares. LupuFree is one of the best supplements for people lupus patients. With FDA- approved ingredients, the supplement is safe and effective. It reduces inflammation and balances the immune system that can help prevent lupus flares.